This year Brainwave partnered with the Parallel London, to help raise vital funds and awareness for the importance of inclusivity. 

.

   

 

.

Parallel London is a fun run that allows any and all participants, no matter their capability,

disability or ability, to take part. Participants are not restricted by a cut-off time and jogging, running side-by-side, walking or being pushed are all allowed in the range of 10km, 5km, 1km or 100m races.  Parallel London also hosted the Super Sensory 1km, which offered various experiences such as sound, scent, texture, and lights.

 

Seven children that attend Brainwave for therapy took part, along with their parents, grandparents, and other family and friends and helped to raise over £8,000 to help other children attend for therapy.

.

.

 

.

Cady was one of these children who took part in Super Sensory 1km: her first ever fundraising walk on her own two feet. Written by Cady’s parents:

.

Cady, aged five, was born with a genetic condition which has affected her development in all areas. We don’t know exactly what condition she has as the gene responsible hasn’t been identified yet. But at two months shy of two years of age, she couldn’t sit up by herself, crawl or pull up to stand. Walking seemed a long, long way off.

 

We attended the Brainwave Centre in Essex and spent two full days being assessed. Cady worked through exercises and then continued them at home.

 

Within three weeks of that first visit, she was sitting up, and shortly after her second birthday she crawled for the first time. We continued to visit Brainwave two or three times a year and the therapists there would tweak her programme, recognising her achievements and adding new exercises to keep her moving forward.

 

At three years, three months and 19 days, she took her first independent steps. Today, at five years old, she walks primarily with a walker outdoors but is walking more and more on her own at home and at school. She grows stronger and stronger every day, in no small part thanks to the Brainwave programme.

 

As her mobility has improved, and we have turned our focus to other aspects of her development. Aside from her mobility challenges, she struggles with fine motor movements and has no verbal speech. She communicates via an alternative and augmentative communication (AAC) device which acts as her voice. She also has an intellectual disability, but it hasn’t stopped her learning her alphabet this year, and she loves counting and watching Sesame Street videos on YouTube!

 

We were very excited to learn about the Super Sensory 1km event at Parallel London, for several reasons. First of all, for the first time ever, Cady would be completing a walk by herself! We were of course there to support her all the way! Secondly, it gave us a chance to raise some money for Brainwave, which has been such an instrumental part of Cady’s journey so far. And third, Cady also has some sensory sensitivities associated with her condition, so the various sensory stations along the route were great for her to explore and give her some short-term targets during the walk.

We would like to say congratulations and thank you to all that took part in Parallel London and we look forward to next year’s event.

 

If you’re interested in taking part in next year’s event then please get in contact with our Community Fundraiser, Lauren Scott on [email protected] or 07872 548450.